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Sinha Akruti
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Sinha Akruti
What is the role of Rare disease organisation ?
Imagine being diagnosed with a condition so rare that most doctors have never heard of it, let alone know how to treat it. Your
June 02, 2025
Sinha Akruti
How Can Concierge Services Personalize the Rare Disease Journey?
Let's be real: living with a rare disease is anything but straightforward. From struggling to get the correct diagnosis to juggling endless appointments and trying
May 01, 2025
Sinha Akruti
Collaboration for a Cure: How Charities Partner to Advance Rare Disease Research
Rare diseases, which affect a small portion of the population, present unique diagnosis, treatment, and research challenges. Due to their low prevalence, funding and research
September 02, 2024
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